Well I can go into this weekend with a big sigh of relief! Just got the betas back and my numbers jumped from 1497 to 3,576!! They are rising beautifully!! I just pray that this is our rainbow!! I know I keep saying each day is different...one day could change from the next. But today is wonderful news, and I am holding on to this feeling all day!!!
December 4th is my birthday and I certainly know what I will be wishing for when blowing out the candles! Tomorrow marks the 5wk mark also!! It will be a pretty nice weekend if we all make it through!! haha! Next up, Ultrasound on Tues to hopefully see a nice healthy sac! :)
Have a great weekend everyone!!
Showing posts with label hcg. Show all posts
Showing posts with label hcg. Show all posts
Friday, December 2, 2016
Wednesday, November 30, 2016
Betas
Just received my 4th beta results and it's increased from 808 to 1497! Great news most definitely! I am still on pins and needles and taking it one day at a time. I have an ultrasound scheduled for the 6th as well. They want me to do ANOTHER beta test on Friday which I feel is just a bit ridiculous! These places I feel like to milk that insurance $$ whenever possible. On top of that - they stress me the f$%k out!!! I don't need that stress anymore if my numbers are going up or down! It's excruciating to sit and wait for the results all day not knowing if this is going to progress or not! Pure torture! I hate that I have to go in AGAIN...but what can I do. Ugh.
Anyway, good news still! Keep those prayers up!! Grow baby grow!
Anyway, good news still! Keep those prayers up!! Grow baby grow!
Monday, November 28, 2016
Updates!
I have some good updates and some not so good updates. First off, with the good! I went in for my third beta today and it is at 808!! That is excellent and they are rising perfectly! ALSO - the brown spotting has stopped since last friday! My doctor thinks perhaps it was implantation bleeding or progesterone. So alllll is good so far! I am 4 weeks and 2 days today - so this week is insanely crucial as I have never passed the 5 week mark except once.
The bad...I got my follow up NK results and looks like my levels are still elevated. My doctor really wants me to do IVIg but I just cannot afford that! I have also done a lot of research as of late regarding NK cells/high tnf and I have learned that NK cells need to be determined through uterine scraping/ not by bloodwork. Because everyone has NK cells in their blood - it's normal! Anyway - without getting into too much depth with it all - I am not really convinced that the NK assay tests I've been doing are proving much. I tweeted to Dr. Braverman on twitter - and he actually responded to me. He stated if the levels are not done by serum - they are worthless. He said intracellular tests show and prove nothing. So I am at a loss. But after researching other women in the same boat as I am - they seem to get along fine with just a higher dose of prednisone. So I asked my doctor to up the dosage to 40mg a day. Which she agreed.
So I will take 40mg a day to hopefully keep things suppressed enough to not interfere with anything. And by the grace of God - it will work. I am no doctor - and I could be taking a huge risk with all of this by "self diagnosing and self treating" myself through my own private research. But I just am not comfortable doing a blood transfusion treatment that costs a ridiculous amount of money and isn't guaranteed 100% to even work!! Maybe I am wrong - and if all goes wrong - I will give it a go next time. But I am praying in my gut that I am making the right choice by sticking with the treatment plan I am currently on - and by upping the steroid dosage. I guess we will see.
But enough of all that....I am taking this one day at a time. And today, things are POSITIVE. 808!!! Grow baby grow!!!!!
The bad...I got my follow up NK results and looks like my levels are still elevated. My doctor really wants me to do IVIg but I just cannot afford that! I have also done a lot of research as of late regarding NK cells/high tnf and I have learned that NK cells need to be determined through uterine scraping/ not by bloodwork. Because everyone has NK cells in their blood - it's normal! Anyway - without getting into too much depth with it all - I am not really convinced that the NK assay tests I've been doing are proving much. I tweeted to Dr. Braverman on twitter - and he actually responded to me. He stated if the levels are not done by serum - they are worthless. He said intracellular tests show and prove nothing. So I am at a loss. But after researching other women in the same boat as I am - they seem to get along fine with just a higher dose of prednisone. So I asked my doctor to up the dosage to 40mg a day. Which she agreed.
So I will take 40mg a day to hopefully keep things suppressed enough to not interfere with anything. And by the grace of God - it will work. I am no doctor - and I could be taking a huge risk with all of this by "self diagnosing and self treating" myself through my own private research. But I just am not comfortable doing a blood transfusion treatment that costs a ridiculous amount of money and isn't guaranteed 100% to even work!! Maybe I am wrong - and if all goes wrong - I will give it a go next time. But I am praying in my gut that I am making the right choice by sticking with the treatment plan I am currently on - and by upping the steroid dosage. I guess we will see.
But enough of all that....I am taking this one day at a time. And today, things are POSITIVE. 808!!! Grow baby grow!!!!!
Labels:
4weeks,
goodnews,
hcg,
hcgrising,
immunes,
immunology,
prednisone,
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Wednesday, November 23, 2016
Doubling
Just got The results from my second beta and it's doubled from 19.5 to 57! I just scheduled my second round of intralipids for friday! Still a long way to go but I will take any positives that will come my way so regardless of what tomorrow will bring - today is a good day. :)
Tuesday, November 22, 2016
Betas
My beta is at 19.5 as of yesterday. Definitely pregnant. Now I go in tomorrow to see if it's doubling. That's the important factor. Last time I did this it started at 23 and only went to 24 after two days. So naturally, I am nervous.
I have a certain peace about it in a way though. I guess it comes after going through this for so many times. The peace is, I have no control over what will happen. It will either be or it won't be. It's out of my hands at this point. I have done so much already to try and change the outcome and if it still doesn't work out - then I won't give up, but I will leave it knowing I am doing everything in my power to make it work. It's all I can do, so I am ok with that.
I will update tomorrow when I get my beta results. :)
I have a certain peace about it in a way though. I guess it comes after going through this for so many times. The peace is, I have no control over what will happen. It will either be or it won't be. It's out of my hands at this point. I have done so much already to try and change the outcome and if it still doesn't work out - then I won't give up, but I will leave it knowing I am doing everything in my power to make it work. It's all I can do, so I am ok with that.
I will update tomorrow when I get my beta results. :)
Labels:
babies,
betas,
hcg,
highhopes,
miscarriage,
positive,
pregnancy,
pregnancyloss,
rainbows,
realistic
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