Today I went to my post op appt. Everything went as I expected - no endometriosis to be found and everything looked great in there. So I can officially cross that off the list of things. So before I get started with the appt. I had quite an interesting week. I have been pounding the pavement to find a doctor to prescribe me Plaquenil. (hydroxychloroquine). ((the drug I have been wanting my specialist to prescribe to me)). I knew she wasn't going to - so I contacted my primary care doctor about it. He took a step further than my specialist would - and actually researched it for me, however, he felt he couldn't prescribe me something on the basis of what I wanted to use it for (infertility) since he knew nothing about it. Which is understandable and at least he was willing to look into it for me which I appreciated.
So I contacted my fertility specialist again (shot in the dark) attempt and she yet again shot me down. She suggested I see a rheumatologist and that she cannot help me in getting it. Ok. FINE. So I made an appt with a rheumatologist for the 9th of August. NOW. Today I went to my post op and talked with my doctor there. He is very nice, and actually listens to me and my concerns. I told him about plaquenil and stated the reasons why I felt it would benefit me. And guess what. HE is going to prescribe it to me!!!!! On top of that - he wants to care for my issues and wants me to entrust him in my pregnancy journey. He is not an immunologist - and isn't too familiar with how it relates to pregnancy loss - HOWEVER - he isn't opposed to giving me the right medication he feels will help suppress my immune system during pregnancy. So on top of the plaquenil, I will be on a low dose steroid which my fertility dr wanted to put me on anyway. We will retest the TNF levels in a month and see where we are at.
FINALLY I found a doctor who understands and is willing to help me!! And thinks outside the box!! I couldn't be more thrilled! So I get to start this medication tonight!!! I am not saying this is going to be my miracle drug - but it's definitely worth a shot!!! And for the steroid and plaquenil - it cost me a total of $14!!! Sure beats the $2500 per shot of IVIg if it works!! God I hope it works!! It's my last ditch effort to try and do this without breaking my bank account. Praying for miracles over here!
Anyway, so that's the latest and greatest! I will keep you posted on how it's all going! But woooohoooooooooooooo for the Plaquenil! Finally!!!!
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